Lifestyle

Thousands of people maintain active lives while undergoing regular dialysis. With careful scheduling around your dialysis treatments, you may be able to continue to work and keep up with leisure activities, even travel.

If you are not able to continue working due to disability once you start dialysis, you can apply for Social Security Disability Insurance by calling 1-800-772-1213. You can also apply at the local social security office or through the human resources department at your place of employment.

Transportation

If you need transportation to dialysis and meet eligibility requirements, state Medicaid may cover costs to get you to and from your dialysis center. It may take a few weeks to get the paperwork turned in and approved by Medicaid, however, so you should plan on finding your own transportation for the first 10 dialysis treatments. Social workers at the dialysis unit will assist you with transportation planning. You may need help from friends and family to get you to and from your treatments.

Financial Concerns

Everyone who needs hemodialysis will receive the appropriate medical treatment. Washington University charges for doctor’s services. Barnes-Jewish Hospital charges for tests and procedures. Staff from both billing offices will determine your insurance coverage for dialysis. If your insurance plans are out of network for either or both services, causing a very high co-pay, we will help you find the best dialysis unit that your insurance will cover.

You may already have or be eligible for Medicare. Medicare will combine with your health insurance to cover dialysis costs. If you have group health insurance from your job, Medicare will be a secondary insurance for the first 30 months of dialysis.

Medicare usually becomes the primary payer after 30 months, no matter what your age is. If you do not have Medicare at this time, Medicare will start to pay for your hemodialysis treatment at a center on the first day of your third full month of hemodialysis. The social workers and business office will help you apply for Medicare. State Medicaid also pays for dialysis. Medicare Part D will help pay for medications.

Emotional Concerns

It may be difficult to adjust to dialysis therapy. You and your family may be anxious and overwhelmed with all you have learned, the decisions and plans. This is normal and expected. It’s important to note though, most people feel their lives get back to normal in a short period of time after starting dialysis and are able to adjust to treatments and medications. Talk to your family, health care team or spiritual advisor and social worker for help with coping with the stress associated with your initial adjustment.

Dialysis on the Go (Travel)

If you travel for business or pleasure, you can still learn to dialyze on the go. The key is learning to plan in advance. First, check with your physician to see if it is okay to travel. Then, tell the dialysis team your travel dates so we can help coordinate referrals and insurance coverage. Because planning all of the logistics takes time, you should begin your advance planning four to six weeks before your scheduled trip.

For in-center dialysis, you will need to find a dialysis unit close to your destination. There are even some cruise lines that offer dialysis while on board. A list of dialysis units in the United States can be found on the internet. Examples of good websites include

www.ultracare-dialysis.com

www.GlobalDialysis.com

www.nephron.com

www.DialysisFinder.com)

If you don’t have internet access, ask your renal team to look up center phone numbers for you.

Plan Ahead

You do need to plan for any unforeseen emergencies, such as delayed arrivals that may affect if and when you can dialyze. Before you travel talk with your dietitian about emergency supplies to keep with you at all times, including all medications as well as recommended foods to eat or avoid. See Diet and Nutrition